Primary Record
Primary Record is the app designed for families to have one secure place to organize, collaborate, and share health data – bringing together invaluable information scattered across patient portals, three-ring binders and post-it notes. With confidence, family members and trusted advocates are empowered to organize medical information for seamless sharing with those who matter most, enabling them to quickly retell the health journey before, between and after appointments.
Primary Record is the app designed for families to have one secure place to organize, collaborate, and share health data – bringing together invaluable information scattered across patient portals, three-ring binders and post-it notes. With confidence, family members and trusted advocates are empowered to organize medical information for seamless sharing with those who matter most, enabling them to quickly retell the health journey before, between and after appointments.
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About Primary Record’s Application: Primary Record is the app designed for families to have one secure place to organize, collaborate, and share health data – bringing together invaluable information scattered across patient portals, three ring binders and post-it notes. With confidence, family members and trusted advocates are empowered to organize medical information for seamless sharing with those who matter most, enabling them to quickly retell the health journey before, between and after appointments. We are also powering Primary Record Professional, a secure management system for care managers and patient advocates in one easy to use, secure portal. With frequent changes in health and complex moving parts, a centralized hub for an individual's care team is imperative. Seamless communication between caregivers, knowing when things change and ensuring a cohesive experience from doctor’s office to at-home care, results in better coordinated care and improved outcomes. How It Works: Primary Record allows family members to easily share health information while navigating through healthcare system transitions, visiting new physicians, and tracking health changes between appointments. Collecting: The software gives customers the flexibility to either input medical information manually or download certain electronic health data from available patient portals. When connecting to patient portals, it only retrieves a copy of the information into the Primary Record application, allowing customers to edit and make notes in one place. Organizing: Customers have the ability to connect related health details, clarifying the what, when, who, and why for others. For example, a medication record from a patient portal can be easily linked with its related conditions, pharmacy, and the prescribing doctor within Primary Record. Share by Invitation: The account owner, also referred to as the profile organizer, can grant collaborators access to view and edit the medical profile, ensuring it remains current. Unique to Primary Record, this feature allows organizers to control what invited collaborators can see and edit, based on the permissions set. Share by Health Summary: Reports can be generated and shared as a PDF or via a link, allowing customers to have current and summarized medical information to share. For example, keeping an accurate medication list in Primary Record allows organizers and invited collaborators to generate a report of current medications to share. Cost: Primary Record is free to use but also offers premium services when a customer needs additional services to use their health information for better care. The premium services are enabled with a subscription that can be turned on or off at any time.
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Frequently Asked Questions
My Health Application is being managed by the CARIN Alliance, which is a multi-sector alliance led by distinguished risk-bearing providers, health plans, pharmaceutical companies, consumer platform companies, health IT companies, third-party applications, and consumer-advocates working collaboratively with other stakeholders in government to overcome barriers in advancing consumer-directed exchange across the U.S.
The CARIN Alliance manages only this website; the CARIN Alliance does not endorse, certify, or manage any of the applications listed on this site. You should make your own judgment as to the application that is best for you based on information provided by the application vendors.
The vision of the CARIN Alliance is to rapidly advance the ability for consumers and their authorized caregivers to easily get, use, and share their digital health information when, where, and how they want to achieve their goals. Specifically, we are promoting the ability for consumers and their authorized caregivers to gain digital access to their health information via non-proprietary application programming interfaces or APIs.
We envision a future where any consumer can choose any application to retrieve both their complete health record and their complete coverage information from any provider or health plan in the country in a secure manner while protecting their privacy and individual consent sharing preferences. This website helps to advance the ability for consumers to access an application of their choice based on their own individual data sharing preferences.
The CARIN Code of Conduct is a set of industry-leading best practices that the companies offering these applications have voluntarily adopted to protect and secure your health information. We strongly recommend that you read the application’s privacy policies and terms and conditions to ensure that you select an application that you feel would protect and secure your health data in a way that is consistent with your individual data sharing preferences.
We would strongly recommend you read the application’s privacy policies and terms and conditions to ensure you select an application that you feel would protect and secure your health data in a way that is consistent with your individual data sharing preferences.
These applications came from the CMS Blue Button 2.0 site, EHR application vendor websites, CARIN Alliance members, and other public sources. Right now, the only thing that the CARIN Alliance has done is list the websites. Our initial goal is to focus on transparency and making sure the individual selecting an application knows where to go to find an application. We are also trying to make each application’s privacy policies and terms of service more readily available to the individual. Over time, we want to provide more consumer-friendly ways to help individuals understand how these applications are using their data.
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